Diana Rasmussen, the executive director and client services coordinator of the ALS Society of Manitoba, is highlighting fundraisers in Manitoba this June [1].
These efforts aim to increase visibility and financial support for those living with amyotrophic lateral sclerosis (ALS), a progressive neurodegenerative disease. With nearly 4,000 Canadians currently living with the condition [2], local fundraising is critical for providing patient services and funding medical research.
While some reports indicate that ALS Awareness Month is observed in May [3], the ALS Society of Manitoba is focusing its community outreach and fundraising events throughout June [1]. This discrepancy in timing highlights the regional nature of some awareness campaigns, though the goal remains a unified effort to support patients, and their families.
"An ALS diagnosis can be devastating. What we want people to know is that there is a community ready to support them," a spokesperson for the ALS Society of Canada said [2].
Other public figures have joined the cause to amplify the message. Actor Russell Andrews, who was diagnosed with ALS in 2025 [4], has used his public profile to advocate for the cause. "I want to use my platform to raise awareness and support for ALS research," Andrews said [4].
Across the country, organizations continue to push for greater visibility. An ALS Canada spokesperson said the organization is proud of the progress made this year and urges Canadians to take action during the awareness period [5]. The society's work in Manitoba focuses on ensuring that residents have access to the necessary resources, and community support to manage the disease.
“Nearly 4,000 Canadians are living with ALS”
The push for awareness in both May and June suggests a prolonged period of advocacy to maximize fundraising and public education. By leveraging both regional events in Manitoba and the visibility of public figures like Russell Andrews, the ALS Society aims to bridge the gap between diagnosis and accessible community support for the thousands of Canadians affected by the disease.
