The Centers for Disease Control and Prevention may contact eligible participants of the SEED study to invite them to complete a follow-up survey.
This outreach is critical for understanding how autism affects individuals as they transition into adulthood. By gathering longitudinal data, researchers can better identify the specific challenges and successes experienced by the SEED cohort in their early adult years.
The survey targets participants who are 18 years of age or older [1]. The CDC is conducting this outreach in the U.S. to ensure the research cohort provides a comprehensive look at young adult outcomes.
Eligible individuals may be contacted directly by the agency to participate in the process. The data collected will be used to expand the existing knowledge base regarding the SEED autism research cohort, specifically focusing on the transition to adulthood.
Because the study relies on the participation of original cohort members, the agency is utilizing direct outreach to maximize the response rate among the 18-and-older demographic [1]. This effort allows the CDC to track long-term trends and health outcomes that were not captured in earlier stages of the research.
“The CDC may contact eligible participants directly to invite them to take and complete a follow-up survey.”
This follow-up effort represents a shift toward longitudinal analysis in autism research. By targeting the 18-plus demographic, the CDC is attempting to bridge the data gap between childhood diagnosis and adult living conditions, which can inform public health policy and support services for neurodivergent adults.




